Wednesday, June 10, 2009

Trevor Aldrian

Yesterday, I found out about another baby being tested for Krabbe Disease. Trevor Aldrian and his twin brother Tyler were born in November 2008. Tyler does not show symptoms yet of Krabbe, in fact, he is thriving. They live in California, where of course Krabbe's Disease is still not screened for at birth. My heart breaks for his parents. Again, I can feel the anger boiling inside at the cruelty of this disease. Please visit his Caring Bridge site and let them know that there are others praying for them and thinking about them.

Greyson's Law is awaiting the signature of Governor Perry. Hopefully that will be done very soon.

1 comment:

Beth said...

I just don't understand why this is not a standard test?? Thanks for bringing this to our attention

Who Knew? Update Version..... Please pass it on.