Trevor Aldrian

Yesterday, I found out about another baby being tested for Krabbe Disease. Trevor Aldrian and his twin brother Tyler were born in November 2008. Tyler does not show symptoms yet of Krabbe, in fact, he is thriving. They live in California, where of course Krabbe's Disease is still not screened for at birth. My heart breaks for his parents. Again, I can feel the anger boiling inside at the cruelty of this disease. Please visit his Caring Bridge site and let them know that there are others praying for them and thinking about them.

Greyson's Law is awaiting the signature of Governor Perry. Hopefully that will be done very soon.

Greyson's Law HB 1795

Today, Nicole came into my classroom with papers in her hand.  She handed them to me and it took everything I had not to crumble into a heap of tears. What she handed me was a copy of the House Bill for Greyson's Law.  I couldn't believe that it was right in front of me in black and white.  

I picture Greyson doing a little dance up in heaven.  Oh, I just know he is so very proud.  Thank you Greyson Morris!  You are changing the world!

We are one GIANT step closer!  Soon all babies born in Texas will be screened for Krabbe Disease!  

Follow this link to view the bill. 

Follow this link to contact the committee members we need to support the bill.  Please include the HB number in your email.  

We need your support!  Please help us save other children!